I Know This is Horrible…But…

There was a Facebook post written by a woman recently that was shared among my tribe. The woman who wrote the post gave two reasons why she thought people should not bring their “disabled children” to a park packed with kids. I won’t post the actual post here out of respect for her privacy. The post prefaced her opinion with “I know this sounds horrible, but… “ Because, you know, that makes it okay to say things that make people feel bad. This woman is entitled to her opinion, and…

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Showing the World What My Daughter is Capable Of

Five and a half years ago we were blessed with a little bundle of joy on the morning of Christmas Eve. Our daughter, Evalyn, came into the world as an early Christmas gift for us. She was born with a serious congenital heart defect and struggled after birth. Although we knew about her diagnosis during my pregnancy, we were still not prepared to watch her be whisked away to the NICU and transferred after only a few hours to a Cardiac Intensive Care Unit at a children’s hospital over an…

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Coming To Terms With My Son’s Genetic Condition

Parenting a child with a special need means learning how to separate fear from love; they are so intimately bound together in a parent’s heart. Every single day is born with hope for ease of pain or illness while dread tiptoes closely behind that hope, reminding one that health is a fragile state that can be knocked away in seconds. Like any other mother, I often found myself saying, “I just want a healthy baby,” during my first pregnancy. Everything about my pregnancy was average and expected. It never occurred…

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Discrimination: My Son Can Hear You

When it comes to them and their special needs, nothing sets off a special needs mom like discrimination. In school, I worry children will not accept them for who they are. In the world, I have to teach them about fairness and how to accept what you can’t change. Never did I feel like I would have to teach them about discrimination within my town. This is an open letter to anyone who has ever made fun of or treated another with special abilities differently. To Whom it May Concern:…

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