Coming To Terms With My Son’s Genetic Condition

Parenting a child with a special need means learning how to separate fear from love; they are so intimately bound together in a parent’s heart. Every single day is born with hope for ease of pain or illness while dread tiptoes closely behind that hope, reminding one that health is a fragile state that can be knocked away in seconds. Like any other mother, I often found myself saying, “I just want a healthy baby,” during my first pregnancy. Everything about my pregnancy was average and expected. It never occurred…

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